Volume 3,Issue 7
肠造口家庭照顾者病耻感的概念分析
目的：运用Rodgers演化概念分析法定义造口患者家庭照顾者病耻感的概念。方法：系统检索数据库，根据纳入和排除标准筛选文献。并以Rodgers演化概念分析法为理论依据。结果：共纳入40篇文献，其中中文文献 20篇，英文文献 20篇。概念属性包括心理羞耻、社会歧视、心理脱离3个方面。前因变量是人口学因素、患者因素、社会因素3个方面；后果主要为照顾者出现负性情绪、经济负担、性生活受限、家庭亲密度下降4 个方面。结论：明确了造口患者家庭照顾者病耻感的概念，为以后开展此概念的质性研究提供参考。
[1]许勤, 程芳, 戴晓冬, et al. 永久性结肠造口患者社会心理适应及相关因素分析[J]. 中华护理杂志, 2010, 45(10): 883-5.
[2]RODGERS B L. Concepts, analysis and the development of nursing knowledge: the evolutionary cycle [J]. J Adv Nurs, 1989, 14(4): 330-5.
[3]杜亚格, 张春梅, 窦昊颖. 应用Rodgers演化概念分析法界定老年人疏于照顾 [J]. 中国老年学杂志, 2021, 41(16): 3590-4.
[4]SCAMBLER G, HOPKINS A. Generating a model of epileptic stigma: The role of qualitative analysis [J]. Social Science & Medicine, 1990, 30(11): 1187-94.
[5]VASILEIOU K, BARNETT J, BARRETO M, et al. Experiences of loneliness associated with being an informal caregiver: a qualitative investigation [J]. Frontiers in psy
chology, 2017, 8(585.
[6]陈有娣, 韩紫音, 张艺, et al. 类风湿关节炎病人病耻感的研究进展 [J]. 全科护理, 2024, 22(14): 2633-7.
[7]吕群, 徐水琴, 孙一勤, et al. 农村老年慢性病病人家庭照顾者心理负担相关因素研究 [J]. 护理研究, 2013, 27(23): 2455-7.
[8]GAUTAM S, POUDEL A. Effect of gender on psychosocial adjustment of colorectal cancer survivors with ostomy [J]. Journal of Gastrointestinal Oncology, 2016, 7(6): 938.
[9]王叶, 汤观秀, 颜萍平, et al. 失能老年人社会支持研究现状 [J]. 护理研究, 2020, 34(23): 4177-81.
[10]董万里, 宋葆云, 孙晓林, et al. 肠造口患者照顾者照顾负担及社会支持的纵向研究 [J]. 护理学杂志, 2017, 32(24): 80-1+102.
[11]DHOUIB W, IBRAHIM B, BANNOUR R, et al. The burden of Alzheimer’s caregivers and social support in the Tunisian family [J]. European Journal of Public Health,
2021, 31(Supplement_3): ckab165. 577.
[12]孙懿松, 朱茜, 徐琼峰, et al. 永久性肠造口病人主要照顾者护理负担的调查[J]. 循证护理, 2017, 3(06): 605-8.
[13]GILBERT P, PEHL J, ALLAN S. The phenomenology of shame and guilt: An empirical investigation [J]. British Journal of Medical Psychology, 1994, 67(1): 23-36.
[14]PERSSON E, SEVERINSSON E, HELLSTRÖM A-L. Spouses’ perceptions of and reactions to living with a partner who has undergone surgery for rectal cancer resulting
in a stoma [J]. Cancer nursing, 2004, 27(1): 85-90.
[15]宁淑艳, 殷国梁, 徐若媛, et al. 肠造口病人家庭主要照顾者孤独感现状及影响因素分析 [J]. 护理研究, 2022, 36(04): 572-9.
[16]VURAL F, HARPUTLU D, KARAYURT O, et al. The impact of an ostomy on the sexual lives of persons with stomas: a phenomenological study [J]. Journal of Wound
Ostomy & Continence Nursing, 2016, 43(4): 381-4.
[17]杜月娥, 张娴, 裴新荣, et al. 肠造口病人家庭亲密度与适应性的调查研究 [J]. 护理研究, 2017, 31(16): 1947-50.